{"id":7915,"date":"2019-09-27T13:18:55","date_gmt":"2019-09-27T13:18:55","guid":{"rendered":"http:\/\/medicina.udd.cl\/icim\/?p=7915"},"modified":"2019-09-30T14:03:13","modified_gmt":"2019-09-30T14:03:13","slug":"pionero-curso-internacional-de-enfermedades-raras-congrega-a-pacientes-y-especialistas","status":"publish","type":"post","link":"https:\/\/medicina.udd.cl\/icim\/2019\/09\/27\/pionero-curso-internacional-de-enfermedades-raras-congrega-a-pacientes-y-especialistas\/","title":{"rendered":"Pionero Curso Internacional de Enfermedades Raras congrega a pacientes y especialistas"},"content":{"rendered":"<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone wp-image-7921 size-large\" src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/Grupo-final-1024x498.jpg\" alt=\"\" width=\"1024\" height=\"498\" srcset=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/Grupo-final-1024x498.jpg 1024w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/Grupo-final-300x146.jpg 300w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/Grupo-final-768x374.jpg 768w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/Grupo-final.jpg 2048w\" sizes=\"auto, (max-width: 1024px) 100vw, 1024px\" \/><\/p>\n<p>En el Aula Magna de la Cl\u00ednica Alemana se realiz\u00f3 el Curso Internacional de Enfermedades Raras, actividad organizada por la Facultad de Medicina Cl\u00ednica Alemana Universidad del Desarrollo y por el Departamento Cient\u00edfico Docente de Cl\u00ednica Alemana, que reuni\u00f3 a expertos nacionales e internacionales en la materia.<\/p>\n<p>Este encuentro congreg\u00f3 el rol de los pacientes, agrupaciones, m\u00e9dicos, investigadores y legisladores, con la finalidad de crear una comunicaci\u00f3n directa con miras de buscar soluciones importantes a estas condiciones poco frecuentes, as\u00ed como dar continuidad a investigaciones en pro del bienestar de los afectados.<\/p>\n<div id=\"gallery-1\" class=\"carousel slide carousel-gallery\" data-ride=\"false\" data-interval=\"false\"><div class=\"carousel-inner\" role=\"listbox\"><figure class=\"carousel-item active\"><img loading=\"lazy\" decoding=\"async\" width=\"801\" height=\"534\" src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0908-440x245.jpg\" class=\"attachment-landscape_952 size-landscape_952 lazyload\" alt=\"\" sizes=\"auto, (max-width: 801px) 100vw, 801px\" data-src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0908.jpg\" data-srcset=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0908.jpg 5184w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0908-300x200.jpg 300w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0908-768x512.jpg 768w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0908-1024x683.jpg 1024w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0908-600x400.jpg 600w\" \/><\/figure><figure class=\"carousel-item\"><img loading=\"lazy\" decoding=\"async\" width=\"801\" height=\"534\" src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0860-440x245.jpg\" class=\"attachment-landscape_952 size-landscape_952 lazyload\" alt=\"\" sizes=\"auto, (max-width: 801px) 100vw, 801px\" data-src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0860.jpg\" data-srcset=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0860.jpg 5184w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0860-300x200.jpg 300w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0860-768x512.jpg 768w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0860-1024x683.jpg 1024w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0860-600x400.jpg 600w\" \/><\/figure><figure class=\"carousel-item\"><img loading=\"lazy\" decoding=\"async\" width=\"801\" height=\"534\" src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0880-440x245.jpg\" class=\"attachment-landscape_952 size-landscape_952 lazyload\" alt=\"\" sizes=\"auto, (max-width: 801px) 100vw, 801px\" data-src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0880.jpg\" data-srcset=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0880.jpg 5184w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0880-300x200.jpg 300w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0880-768x512.jpg 768w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0880-1024x683.jpg 1024w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0880-600x400.jpg 600w\" \/><\/figure><figure class=\"carousel-item\"><img loading=\"lazy\" decoding=\"async\" width=\"801\" height=\"534\" src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0863-440x245.jpg\" class=\"attachment-landscape_952 size-landscape_952 lazyload\" alt=\"\" sizes=\"auto, (max-width: 801px) 100vw, 801px\" data-src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0863.jpg\" data-srcset=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0863.jpg 5184w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0863-300x200.jpg 300w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0863-768x512.jpg 768w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0863-1024x683.jpg 1024w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0863-600x400.jpg 600w\" \/><\/figure><figure class=\"carousel-item\"><img loading=\"lazy\" decoding=\"async\" width=\"801\" height=\"534\" src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0851-440x245.jpg\" class=\"attachment-landscape_952 size-landscape_952 lazyload\" alt=\"\" sizes=\"auto, (max-width: 801px) 100vw, 801px\" data-src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0851.jpg\" data-srcset=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0851.jpg 5184w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0851-300x200.jpg 300w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0851-768x512.jpg 768w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0851-1024x683.jpg 1024w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0851-600x400.jpg 600w\" \/><\/figure><figure class=\"carousel-item\"><img loading=\"lazy\" decoding=\"async\" width=\"801\" height=\"534\" src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0900-440x245.jpg\" class=\"attachment-landscape_952 size-landscape_952 lazyload\" alt=\"\" sizes=\"auto, (max-width: 801px) 100vw, 801px\" data-src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0900.jpg\" data-srcset=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0900.jpg 5184w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0900-300x200.jpg 300w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0900-768x512.jpg 768w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0900-1024x683.jpg 1024w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0900-600x400.jpg 600w\" \/><\/figure><figure class=\"carousel-item\"><img loading=\"lazy\" decoding=\"async\" width=\"801\" height=\"534\" src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0890-440x245.jpg\" class=\"attachment-landscape_952 size-landscape_952 lazyload\" alt=\"\" sizes=\"auto, (max-width: 801px) 100vw, 801px\" data-src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0890.jpg\" data-srcset=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0890.jpg 5184w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0890-300x200.jpg 300w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0890-768x512.jpg 768w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0890-1024x683.jpg 1024w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0890-600x400.jpg 600w\" \/><\/figure><figure class=\"carousel-item\"><img loading=\"lazy\" decoding=\"async\" width=\"801\" height=\"534\" src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0903-440x245.jpg\" class=\"attachment-landscape_952 size-landscape_952 lazyload\" alt=\"\" sizes=\"auto, (max-width: 801px) 100vw, 801px\" data-src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0903.jpg\" data-srcset=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0903.jpg 5184w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0903-300x200.jpg 300w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0903-768x512.jpg 768w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0903-1024x683.jpg 1024w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0903-600x400.jpg 600w\" \/><\/figure><\/div><footer class=\"carousel-footer\"><div class=\"carousel-counter\"><span class=\"carousel-counter-current\"><\/span> \/ <span class=\"carousel-counter-total\"><\/span><\/div><a class=\"carousel-control-prev\" href=\"#gallery-1\" role=\"button\" data-slide=\"prev\"><svg aria-hidden=\"true\" class=\"svg-chevron-left-dims\"><use xlink:href='https:\/\/medicina.udd.cl\/icim\/wp-content\/themes\/facultades-2018\/assets\/img\/svg\/dist\/main.svg?version=1695853099#chevron-left'><\/use><\/svg><span class=\"sr-only\">Anterior<\/span><\/a><a class=\"carousel-control-next\" href=\"#gallery-1\" role=\"button\" data-slide=\"next\"><svg aria-hidden=\"true\" class=\"svg-chevron-right-dims\"><use xlink:href='https:\/\/medicina.udd.cl\/icim\/wp-content\/themes\/facultades-2018\/assets\/img\/svg\/dist\/main.svg?version=1695853099#chevron-right'><\/use><\/svg><span class=\"sr-only\">Siguiente<\/span><\/a><\/footer><\/div>\n<p>Durante la jornada, el decano de la Facultad de Medicina, doctor Ricardo Ronco, dio la bienvenida y resalt\u00f3 la importancia de este curso internacional y del enfoque del mismo, en el sentido de trabajar con los pacientes como socios y acercar el problema cl\u00ednico al investigador.<\/p>\n<p>\u201cEl reto para este grupo que lidera la doctora Repetto es muy grande, desde lo organizativo, la conexi\u00f3n con pol\u00edticas p\u00fablicas, aspectos regulatorios, bio\u00e9ticos y de investigaci\u00f3n de la realidad de nuestro pa\u00eds\u201d, dijo Ronco.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-medium wp-image-7922\" src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0846-300x200.jpg\" alt=\"\" width=\"300\" height=\"200\" srcset=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0846-300x200.jpg 300w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0846-768x512.jpg 768w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0846-1024x683.jpg 1024w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0846-600x400.jpg 600w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/p>\n<p>Posteriormente, la doctora Gabriela Repetto, explic\u00f3 la importancia de este encuentro, tanto para empatizar con los pacientes como para buscar soluciones conjuntas a esta problem\u00e1tica que afecta a cerca de un mill\u00f3n de personas en Chile.<\/p>\n<p>\u201cLas enfermedades raras se clasifican como tal cuando afectan a menos de una en 2000 personas. La mayor\u00eda de estos casos, afecta a ni\u00f1os y causan discapacidad y\/o muerte precoz. Si bien cada una de estas enfermedades son individualmente raras, el conjunto de todas estas condiciones constituye un problema sustancial de salud p\u00fablica\u201d, indic\u00f3 Repetto.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-medium wp-image-7923\" src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0849-300x200.jpg\" alt=\"\" width=\"300\" height=\"200\" srcset=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0849-300x200.jpg 300w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0849-768x512.jpg 768w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0849-1024x683.jpg 1024w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0849-600x400.jpg 600w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/p>\n<p>Entre los exponentes internacionales estuvieron el Dr. Tim Cox, director de investigaci\u00f3n de la Universidad de Cambridge, Jennifer Posey, Assistant Professor of Molecular &amp; Human Genetics de Baylor College of Medicine, Nara Sobreira, profesora asistente de Medicina Gen\u00e9tica de John Hopkins School of Medicine, y Adrian Thorogood, LLB. Mc Gill University. Por su parte, entre los expositores locales estuvieron los investigadores de la Facultad de Medicina Cl\u00ednica Alemana Universidad del Desarrollo, Dra. Cecilia Poli, Andr\u00e9s Klein, Juan Francisco Calder\u00f3n, Marcelo Ezquer, Gonzalo Encina, Sonia B. Margarit, Boris Rebolledo y Juan Alberto Lecaros.<\/p>\n<div id=\"gallery-2\" class=\"carousel slide carousel-gallery\" data-ride=\"false\" data-interval=\"false\"><div class=\"carousel-inner\" role=\"listbox\"><figure class=\"carousel-item active\"><img loading=\"lazy\" decoding=\"async\" width=\"801\" height=\"534\" src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3256-440x245.jpg\" class=\"attachment-landscape_952 size-landscape_952 lazyload\" alt=\"\" sizes=\"auto, (max-width: 801px) 100vw, 801px\" data-src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3256.jpg\" data-srcset=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3256.jpg 5184w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3256-300x200.jpg 300w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3256-768x512.jpg 768w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3256-1024x683.jpg 1024w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3256-600x400.jpg 600w\" \/><\/figure><figure class=\"carousel-item\"><img loading=\"lazy\" decoding=\"async\" width=\"801\" height=\"534\" src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3254-440x245.jpg\" class=\"attachment-landscape_952 size-landscape_952 lazyload\" alt=\"\" sizes=\"auto, (max-width: 801px) 100vw, 801px\" data-src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3254.jpg\" data-srcset=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3254.jpg 5184w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3254-300x200.jpg 300w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3254-768x512.jpg 768w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3254-1024x683.jpg 1024w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3254-600x400.jpg 600w\" \/><\/figure><figure class=\"carousel-item\"><img loading=\"lazy\" decoding=\"async\" width=\"801\" height=\"534\" src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3243-440x245.jpg\" class=\"attachment-landscape_952 size-landscape_952 lazyload\" alt=\"\" sizes=\"auto, (max-width: 801px) 100vw, 801px\" data-src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3243.jpg\" data-srcset=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3243.jpg 5184w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3243-300x200.jpg 300w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3243-768x512.jpg 768w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3243-1024x683.jpg 1024w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3243-600x400.jpg 600w\" \/><\/figure><figure class=\"carousel-item\"><img loading=\"lazy\" decoding=\"async\" width=\"801\" height=\"534\" src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3271-440x245.jpg\" class=\"attachment-landscape_952 size-landscape_952 lazyload\" alt=\"\" sizes=\"auto, (max-width: 801px) 100vw, 801px\" data-src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3271.jpg\" data-srcset=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3271.jpg 5184w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3271-300x200.jpg 300w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3271-768x512.jpg 768w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3271-1024x683.jpg 1024w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3271-600x400.jpg 600w\" \/><\/figure><figure class=\"carousel-item\"><img loading=\"lazy\" decoding=\"async\" width=\"801\" height=\"534\" src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3260-440x245.jpg\" class=\"attachment-landscape_952 size-landscape_952 lazyload\" alt=\"\" sizes=\"auto, (max-width: 801px) 100vw, 801px\" data-src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3260.jpg\" data-srcset=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3260.jpg 5184w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3260-300x200.jpg 300w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3260-768x512.jpg 768w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3260-1024x683.jpg 1024w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_3260-600x400.jpg 600w\" \/><\/figure><\/div><footer class=\"carousel-footer\"><div class=\"carousel-counter\"><span class=\"carousel-counter-current\"><\/span> \/ <span class=\"carousel-counter-total\"><\/span><\/div><a class=\"carousel-control-prev\" href=\"#gallery-2\" role=\"button\" data-slide=\"prev\"><svg aria-hidden=\"true\" class=\"svg-chevron-left-dims\"><use xlink:href='https:\/\/medicina.udd.cl\/icim\/wp-content\/themes\/facultades-2018\/assets\/img\/svg\/dist\/main.svg?version=1695853099#chevron-left'><\/use><\/svg><span class=\"sr-only\">Anterior<\/span><\/a><a class=\"carousel-control-next\" href=\"#gallery-2\" role=\"button\" data-slide=\"next\"><svg aria-hidden=\"true\" class=\"svg-chevron-right-dims\"><use xlink:href='https:\/\/medicina.udd.cl\/icim\/wp-content\/themes\/facultades-2018\/assets\/img\/svg\/dist\/main.svg?version=1695853099#chevron-right'><\/use><\/svg><span class=\"sr-only\">Siguiente<\/span><\/a><\/footer><\/div>\n<p>Asimismo, en representaci\u00f3n de agrupaciones y pacientes, estuvieron Jessica Cubillos Arellano, madre de ni\u00f1a diagnosticada con S\u00edndrome de Rett y cofundadora del grupo \u201cCaminamos Por Ellas y Ellos S\u00edndrome de Rett Chile\u201d. Y V\u00edctor Rodr\u00edguez Rivera, padre de ni\u00f1o con el S\u00edndrome Menkes y presidente de la Federaci\u00f3n de Enfermedades Poco Frecuentes Chile (FENPOF Chile).<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-medium wp-image-7917\" src=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0897-300x200.jpg\" alt=\"\" width=\"300\" height=\"200\" srcset=\"https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0897-300x200.jpg 300w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0897-768x512.jpg 768w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0897-1024x683.jpg 1024w, https:\/\/medicina.udd.cl\/icim\/files\/2019\/09\/IMG_0897-600x400.jpg 600w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/p>\n","protected":false},"excerpt":{"rendered":"<p>En el Aula Magna de la Cl\u00ednica Alemana se realiz\u00f3 el Curso Internacional de Enfermedades Raras, actividad organizada por la Facultad de Medicina Cl\u00ednica Alemana Universidad del Desarrollo y por el Departamento Cient\u00edfico Docente de Cl\u00ednica Alemana, que reuni\u00f3 a expertos nacionales e internacionales en la materia. Este encuentro congreg\u00f3 el rol de los pacientes, [&hellip;]<\/p>\n","protected":false},"author":9192219,"featured_media":7921,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[4],"tags":[],"class_list":["post-7915","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticias"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.9 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Pionero Curso Internacional de Enfermedades Raras congrega a pacientes y especialistas - ICIM<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/medicina.udd.cl\/icim\/2019\/09\/27\/pionero-curso-internacional-de-enfermedades-raras-congrega-a-pacientes-y-especialistas\/\" \/>\n<meta property=\"og:locale\" content=\"es_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Pionero Curso Internacional de Enfermedades Raras congrega a pacientes y especialistas - ICIM\" \/>\n<meta property=\"og:description\" content=\"En el Aula Magna de la Cl\u00ednica Alemana se realiz\u00f3 el Curso Internacional de Enfermedades Raras, actividad organizada por la Facultad de Medicina Cl\u00ednica Alemana Universidad del Desarrollo y por el Departamento Cient\u00edfico Docente de Cl\u00ednica Alemana, que reuni\u00f3 a expertos nacionales e internacionales en la materia. 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